Zipperheads

I know it has been a while since I posted but I wanted you all to be aware that although this world is constantly filled with dissapointment and letdowns, which seem even worse when you dont feel good 99% of the time, I want you to realize it is a good world. When you are in pain, if you are like me that is everyday, there is someone who needs your smile to make their world a little brighter. How many times do you see someone with a scowl etched upon their face? Smile at them and no that no matter how bad it seems, there is friendliness, caring, and goodness in this world. I know for a fact sometimes when I feel my worse a smile makes everything seem not so bad. We are all heroes to someone, so act like it.

Welcome to a new day

Whether we are people with Chiari, Cancer, CFS, Migraines, or any other disease that millions of people are plagued with we are all looking for the same thing. We want someone who understands us, who cares that we do not feel up to par, that someone can hear us say for the 335 time this year that yet again we have a headache, and wont come back with an exaserbated sigh of "when do you not have a headache." We dont want to be a hindrance or a pain to those we love, but we want people to be considerate of what people with Chiari suffer through. When we get out of bed automatically there is a pain that focuses at teh base of our head and the longer we are up the worse the pain. We still want to see our children laugh and play and say I love you, we still want our spouses to hold us, kiss us, and tell it will be ok. Love is something everyone wants, even the zipperheads.

The future looms

As in all of our lives whether we suffer from Chiari or are just one of the many millions of society, the future looms uncertainly as the ground of Southern California. There is no telling when we will feel the earth move under our feet and I am not talking about earthquakes. Five years ago I was playing soccer, softball, working out and now my handy sidekick is a cane. The future is guaranteed to noone as we all should be aware of. Life is short, live it and love it. I will be going under for yet another surgery but have to tell you, world, that if you have loved ones dont wait until tomorrow to share that love because it was never created to keep inside of yourself. Just like a light, love shines brighter when it is shared.

God Bless,

Pamela

Welcome to a new day

It is so easy to give in to pain and the misery that comes from the pain you suffer everyday. But we know we all have people who love us and to be honest would give anything to take away our pain but is that what we would want them to do? Honestly we would not let them suffer day after day while not being able to find a "fix". I have had the surgery and got relief for two weeks and then back to square one. Take the love your family offers and embrace yourself in it like a warm cloak because there are some days that is all we have and that might be the relief we need. A hug, a cuddle during the day, or a kiss from your child. Love is a good relief strategy.

Peace and Love

Lazy Days

It is a shame in Sunny California when Chiari has knocked a loop so big it is difficult to get around. Days at the beach with the sand between the toes are few. The trips to Texas with camping and horseback riding are less frequent but on a positive note you learn who is willing to take Journeys with you and that is where you learn who your friends are.

Chiari and Doctors

The biggest obstacle I have found with Chiari is doctors and lack of communication. Sometimes I think the best cure for describing this pain to a doctor would be to take an Anvil and drop it on a doctors head. Let them carry that on their head for a week or so then they would understand the constant pain associated with Chiari.

Chiari, The diagnosis

The first time I went to a neuroligist for migraines and was told "I have good news and bad news, good news is you dont have brain cancer but the bad news is your need brain surgery." That was my introduction to the world of Chiari. There are aches and pains that we encounter everyday and will continue to adapt and overcome.